Those of you that follow our blog might remember our beautiful friend Lucy. She has Spinal Muscular Atrophy (SMA) Type 1. I wanted to post the announcement that her mom, Cherisse, posted on their blog. We think this is a great cause so we wanted to pass it on. We love you little, angel Lucy.
Photo by A Little Sussy
Dear Family and Friends,
Some of you know that in March of this year, our now 10-month old daughter, Lucy, was diagnosed with Spinal Muscular Atrophy (SMA) Type 1. SMA is the leading genetic killer of infants. The disease is a terminal, degenerative disease that affects motor neurons, resulting in progressive muscular atrophy and weakness. There is no treatment and no cure for this disease.
Recently, there has been groundbreaking news on a very promising treatment for SMA. They are in need of funding to get the treatment FDA approved so the clinical trials can begin January of 2010.
Several families that have been affected by SMA are uniting to raise $5,000 each to go toward this treatment, and we have decided to unite with them! Ever since Lucy was diagnosed, I have really had a desire to do something - something more than just surviving each day. I want to help raise money to find a cure, help other families who need assistance, or just spread awareness. When I heard about this promising treatment, it brought a little hope to each day.
Being a mother to Lucy's older brother and sister and taking care of Lucy takes most of my day and I wasn't sure how I would be able to do something (or anything) more. When our friends, the Strong's, asked for families who would like to help, I thought, ‘we can do this’. I feel like this goal is attainable for us and, although I am not one to ask for help…especially for money, we have many family members and friends who have asked what they can do. So, if this is something you feel like you can/will support, please use the ‘Unite for the Cure’ button below and forward on to those you feel would be interested in this cause. Regardless of your ability or desire to donate, we are so incredibly grateful for the thoughts, prayers and kindness of all those with whom we have come in contact.
With much gratitude,
Chad and Cherisse Lunt
*To donate, please click on the "Unite for the cure" button below and then click the "Donate Now" Button. Read Instructions on that page and then click the "Click to Donate Now" Button. Make sure to put Lucy's name in the message box so that we can keep track of our goal.
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