This pregnancy has been full of learning experiences. As many of you know, I was sick with Grant the entire time. It has been the same way with this pregnancy but I’ve also had to deal with dizzy spells and I’ve actually passed out a number of times. The only thing doctors can tell me is that my veins dilate and constrict very quickly and so sometimes my blood pressure will rise or drop dramatically, therefore causing me to pass out. Through it all, Grant and Adam have been marvelous. Sweet, little Grant will come make sure I am alright as I hover over the toilet and he also enjoys “frowing up” himself. I love when he just stands there and pats my back. What a big helper. He also takes good care of me when I pass out. There are many times when he will be in the other room and hear something fall so he comes rushing in saying, “Mommy, mommy!” It breaks my heart that he is so scared that something has happened to me. But like I said, I couldn’t ask for a bigger helper. He has been so patient and cooperative with all of the doctor appointments, too.
Many of the doctor appointments have been in regards to our precious Grace. We decided to do the Nuchal Translucency test at the beginning of this pregnancy. It is a 3 part test that gives you a pretty accurate result as to whether or not your child has Down syndrome, or Trisomy 13 or 18. I went in, gave blood, then went in a few weeks later for an ultrasound. They measure the fluid behind the baby’s neck and then combine the results to give you your risk. My blood results indicated that I had a high risk of carrying a child with Down syndrome (high HCG and low PAPPA) and the measurements behind the neck were also higher than 2mm which is another indicator. Our risk for Down syndrome went from 1/900 to 1/21. To be completely honest, we were shocked to get those results. Everyone said not to worry and that it was probably a false positive. Then I gave blood again and the results went to 1/10. When we did the anatomy scan at 19 weeks, we were told that Grace has fluid in her lung. That is another sign of Down syndrome. All along the way, the doctors had pushed us to do an amniocentesis but we did not feel comfortable risking anything. Especially because it wouldn’t do Grace any good, it would just let us know 100% if she did have Down syndrome. When the fluid was found, we were told it could also indicate that she has a viral infection and that it might be treatable. Adam and I decided right then that we would do the amnio if it would help Grace. Luckily, my mom was in town and was able to extend her trip since I wasn’t able to lift Grant for 2 days. Then the waiting game began. Luckily, Grace does not have a viral infection.
It took 2 weeks but yesterday I received a call from my doctor. Grace does have Down syndrome. So many different emotions were felt. Adam and I are so lucky that Heavenly Father trusts us enough to send us such a strong spirit. We are blessed to have such a wonderful son who will be the best big brother ever! We fully accept the opportunity that Heavenly Father has given us and we just hope that we will be able to provide Grace with everything she needs. There is no doubt in our minds that she will do more for us then we will ever be able to do for her. We love you Grace! And we love you Grant…you tell everyone now that “Gracie special” but never forget that you are, too!
14 comments:
We are very touched by your post. You guys are awesome and we know that little Gracie is a special little girl. How amazing! It's hard to see through all of the medical stuff sometimes and still feel the amazing blessing that you have been given. It seems like you guys are doing great though. Congratulations! We have a VERY special place in our heart for Gracie already!
Hey guys, reading about baby Gracie I couldn't help tearing up. I LOVE down syndrome children. I have worked/played with them in and out of school. Each one I know has the sweetest spirit and most gentle heart. You guys are so lucky to have her come into your home. Grant is going to be an awesome brother. He is so caring and loving already. (and so selfless at only 20 months). I can't wait to meet her. She will be beautiful. Let me know if you need anything. Give Grant a hug for me!
We are very proud of your family and thrilled to hear more about Gracie and we especially can't wait to see sweet little pictures of her.
It was so great to see you last week! I wish you were closer so I could be there for you right now. You are right...Grace is lucky to have Grant for a big brother :) He will take good care of her! You are amazing. Keep me posted on all that's going on! Love you!
Jaci you are absolutely amazing! Grace is coming to such a wonderful family. I was so touched by your post that I sent it to Andrew and told him that I hope I can be as positive and grateful as you are with our children. Keep us updated.
Jax Heavenly Father trusts you with this little girl because you are such a wonderful mother!! I can't wait to meet her! I love you and let me know if you need anything!
Wow, I've missed so much. Jaci, this sweet post really touched me. I mentioned on your "It's a Girl" post how much we love the name Grace... but now, it seems even more perfectly fitting for your little girl. I am so sorry to hear about your pregnancies-- I get so sick as well, but passing out, my goodness. You are so amazing and brave. You guys are so blessed to have this special girl come to you, and we know you will be the best parents ever... and little Grant is already such a darling big brother!
You amaze me Jaci. You have a lot of love and strengh in your heart. Grant and Grace will be incredible because of that. I can't imagine the whirl of emotions to feel such a blessing and trial at the same time. But your little family must be amazing!
Oh Jaci, I forgot to tell you. When I was pregnant with Myles I passed out constantly as well. I do anyway, but even more so when I was pregnant. Amazingly everytime they checked my blood pressure they said it was well below normal. The only thing they came up with was that Myles would move to rest on a main artery that was sending blood to my brain. I learned to avoid certain positions that made me feel more light-headed, but really there isn't much you can do but lay down right away so you don't hurt yourself when you fall! Sorry
I came across your blog recently and hope you don't mind me leaving a comment. I have a 4 yr old daughter with Down syndrome. It sounds like you already have a pretty positive attitude about everything (I know receiving that diagnosis isn't easy to hear) but with 2 loving parents Grace can't go wrong :) It's hard too when right now you're just thinking of her diagnosis and what all that means, it'll change after she's here and you get to know her as a person, as your daughter, and the diagnosis becomes secondary.
Congrats on the upcoming birth of your daughter!
Kelly has a nephew with Down Syndrome. You should try and meet Natalie because she rocks and she might be able to give you some good advise. Children with Down Syndrome are the most loving children. You are lucky to have one of Heavenly Father's elite coming to live with you!
Hey Jaci, I'm Meshell's sister Doni... I'm not sure if you remember me or not... Anyhow, I just wanted to let you know that my prayers are with your family & Grace! I definitely believe that she will strengthen your family in ways that seem unimaginable. You are very blessed to have her in your life! I also believe that you must have a strong spirit to have accepted that challenge from our Heavenly Father. He must think very highly of you! ;)
Lots of Love from the Horrocks Family
Jaci....this is Julie Skalla, Joan's daughter. She showed me your cute blog and told me about Gracie. What a sweet entry and a lucky little girl coming to your family. I admire your attitude and outlook. Just wanted to comment. Mom needs a blog so she can! I will work on that!
Julie Dockstader Skalla
you make me cry. Grant and Grace are so lucky to have you.
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